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Tag Archives: Lennox Gestaut Syndrome

Grounded and Descending

For the last two weeks I have been meditating/memorizing Isaiah 53:2-6 and the spirituality of descent of Jesus. Out of a desire to offer a “sincere gift of Himself,” Jesus choseĀ a downward journey of ordinariness, obscurity, rejection and powerlessness. HeĀ chose crucifixion. It preaches well but my resistance to death (and thus resurrection) is deep. Contemplating the cross, however, has made me sensitive, at least recently, about the choices I make each day to follow, or not follow, the crucified Jesus. The following are three simple gifts God gave me this past week: 1. I visited one of our core church family members this past week. Their child has Lennox Gestaut Syndrome –www.lgsfoundation.org, a severe type of epilepsy. For the past four years, they have been in and out of hospitals, working with countless doctors and specialists to control their son’s seizures, and carrying full time jobs in the NYC school system. Their son, once. Read more.